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  1. #51
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    Got friggin scared for the first time. Usually I blend my dinners into purees then drink them like a soup. But it was late and the family was asleep so instead of blending and making a big noise, I ate but chewed everything really well and swallowed it down, albeit with difficulty due to swollen radiated areas . About 10 minutes after I finished eating my throat closed up with more swelling and I couldn't breathe in anything near a normal breath. Panic, I tried calling upstairs for my wife to help but to call out you need breath right? F*ck! Using what felt like all the air I had left in my lungs I croaked out an animal noise and fell to the floor on my hands and knees. They said that guy in NYC who got choked out by the police must have been able to breathe as he was speaking. They have never obviously been choking, you can make sounds while not being able to inhale. I was crawling towards the telephone to call EMS when she caught up with me, I was still gagging, coughing and dribbling buckets out my mouth. After I guess 30 seconds, I was able to slowly inhale enough to calm my panic. She was slapping and rubbing my back (I'll tell her later that that isn't something you should do to someone who can breathe), but her being there helped me a heap. So another 10 minutes of slobbering, drooling, coughing, gagging and wheezing I feel like I won't actually pass out and tell her she can relax. I then swallowed a few painkillers.

    I was told by the radiologist that Anti-inflammatories are a good idea, so as of yesterday, I am on 400mgs of ibuprofen at night to reduce coughing due to swelling and that coughing was also keeping my wife and myself awake at nights.

    Lessons learned: drink your meals cause even small solids can aggravate the swelling. Use painkillers, they work. My wife is indescribably the best thing that ever happened to me. Not sure if she would say the same though, I try though.

  2. #52
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    That must have scared the **** out of you.

  3. #53
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    God dude! I can't imagine how scary that must have been. Hang in there man. Be patient with yourself and determined as hell. Use your cyclist's capacity for pain and endurance. We are a rare breed in that regard. you can do it. Keep on the thread. We're watching it, reading it, and with you (as much as one can be on the webz).

    Cancer sucks, YOU ROCK!

  4. #54
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    Name:  306330d1432937617t-dealing-cancer-my-version-radiationmask.jpg
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    I just got fitted with mine today, and I'm pretty sure I know where you are on this issue.

    I was stationed at Camp Lejeune, N.C. between January 1984 and November 1985. I was an 0811, field artillery in the USMC. Apparently the base fuel depot leaked 1,000,000 gallons of mogas and diesel into the wells of CLNC (Camp Lejeune, North Carolina). There was a nuclear dump site on base as well that leached irradiated rain water into the base wells. The maintenance shops and dry cleaners all dumped their solvents onto the ground as well.

    Roughly 5 years ago, I noticed memory loss and hands shaking. My motor skills and the aforementioned two conditions have worsened. Back in March, I noticed my lymph nodes swelling below my left jaw, so I went to get checked. After a biopsy, the doctor confirmed I have a cancerous tumor on the base of my tongue deep in my throat. He, like myself, did not know anything about CLNC's contaminated ground water, but he said I had rare cancer and with the neurobehavior disorders, it sounds like I was exposed to contaminated ground water. Upon learning about the CLNC water issue, I uttered "______ by the big green weenie again!" It was odd that those words passed my lips as I've not uttered that phrase in nearly thirty years.

    The worst part of all this is dealing with the Veteran's Administration. They're not officially denying CLNC Water Act signed into law back in 2012, but they sure are dragging their bureaucratic heels.

    I don't care one way or the other. If it kills me, well, what can I really do about it? I'm not too worked up about the entire issue. Not that I'm overjoyed, but as previously stated, all the worriment in the world will not cure cancer.

    I'm sorry to bang on about my luck. I guess I was just trying to ease an uncomfortable topic by showing I'm in the same boat. I guess that since 40 years of enduring repeated dog attacks and being hit by a dozen cars, my fortune had to run out sooner or later.

    Best of luck sockpuppet, you'll be in my thoughts.

    cheers,
    appalachian kamper
    Last edited by Appalachian_Kamper; 06-19-2015 at 05:14 PM. Reason: Neither a Rhodes scholar nor a gentleman

  5. #55
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    wow, glad you are able to breathe and type! Hope that is the last time you have to go through that...
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

    "that was like trying to teach a goldfish how to play basketball over the phone."

  6. #56
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    Holy crap, how scary that must have been for you. I'm so glad you were able to get through it.
    While we are free to choose our actions, we are not free to choose the consequences of our actions. - Stephen R. Covey.

  7. #57
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    Quote Originally Posted by 10ae1203 View Post
    That must have scared the **** out of you.
    Quote Originally Posted by r0gue View Post
    God dude! I can't imagine how scary that must have been.!
    Quote Originally Posted by Touch0Gray View Post
    wow, glad you are able to breathe and type! Hope that is the last time you have to go through that...
    Quote Originally Posted by love4himies View Post
    Holy crap, how scary that must have been for you. I'm so glad you were able to get through it.
    It scared me so much that the only thing I have consumed in the last 24 hours is a Mac Donalds shake and some pain killers. Fortunately none of the kids remembered me having a spaz attack and the 18 yr old nephew was out all night so he didn't have to deal with the drama. Not eating is kinda easy after a while. Thanks for the thoughts.

  8. #58
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    Quote Originally Posted by Appalachian_Kamper View Post
    Name:  306330d1432937617t-dealing-cancer-my-version-radiationmask.jpg
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Size:  52.6 KB

    I just got fitted with mine today, and I'm pretty sure I know where you are on this issue.
    The worst part of all this is dealing with the Veteran's Administration. They're not officially denying CLNC Water Act signed into law back in 2012, but they sure are dragging their bureaucratic heels.
    I don't care one way or the other. If it kills me, well, what can I really do about it? I'm not too worked up about the entire issue. Not that I'm overjoyed, but as previously stated, all the worriment in the world will not cure cancer.
    I'm sorry to bang on about my luck. I guess I was just trying to ease an uncomfortable topic by showing I'm in the same boat. I guess that since 40 years of enduring repeated dog attacks and being hit by a dozen cars, my fortune had to run out sooner or later.
    Best of luck sockpuppet, you'll be in my thoughts.
    cheers,
    appalachian kamper
    Wow, that sucks and no amount of worrying will cure it but you need an advocate going to bat for you. What state are you in? You can PM me if you like but for all the lip service people do in saying thank you for your service, most folks want that to be all the sacrifice they want to make.
    The good news is they found it and you are getting it taken care of, at this stage is it just radiation or some other protocol as well. With the neurobehavior problems is medical pot going to help? Can't do any harm can it? At least give it a good honest bash!
    Not much else to say but thanks for the kind words and you too catch the best wishes being sent your way. Keep posting here and keep us filled in but I would really like to do more regarding your apparent lack of advocacy and the rather ponderous bureaucracy.
    see you here again soon.
    SP

  9. #59
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    Really sleepy this weekend, primarily due to swelling making swallowing a bit of an ordeal, consequently calories are way down. I am down from 209 pounds when i started this to 187. So my pants and things are now starting to need the inner drawstring fastened for the first time in a long time. My T-shirts hang straight down from my nipples! Wish I could get on the bike and see what the equivalent of riding no bike feels like, but energy levels prevent it.
    BTW, flat de-carbonated RedBull stings like a biatch on radiated throats. Guess it's not to healthy, Go Figure? I tipped it down the drain after one short sip sent me into coughing and wheezing spasms, thankfully the kids weren't home. Best is simple basic foods not salty or spicy with minimal acidic flavor blended with soy milk or water. Eating healthy, I haven't had a sneeze or snotty nose in 5 weeks, haven't dredged up a phlegm ball either. Again I am learning what not eating crap feels like.
    Cold compressed towels (ice packs) on the outside of the throat are pretty soothing.


    3 weeks to go! Yippee.

  10. #60
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    just a thought, would yogurt go down with no problems?
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

    "that was like trying to teach a goldfish how to play basketball over the phone."

  11. #61
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    Quote Originally Posted by Touch0Gray View Post
    just a thought, would yogurt go down with no problems?
    It's acidic. It was good until a week ago and then the canker sores didn't like it so much, I probably did too much of it though. But as a probiotic it worked great, I still do the occasional sweet yoghurt that still has the lactobacillious stuff in it. Good idea TOG! Lots of soups and roasted vegetable purees too. it's not too bad.

  12. #62
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    hmmmmm, wonder if there is a palatable means to buffer the acidity?
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

    "that was like trying to teach a goldfish how to play basketball over the phone."

  13. #63
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    John's friend mentioned the mask thing last time we saw him, and thanks to this thread, I understood what he was talking about!

    since 40 years of enduring repeated dog attacks and being hit by a dozen cars, my fortune had to run out sooner or later.

    Sorry to hear, especially when you think riding is one way to help *prevent* cancer! If nothing else, it helps us deal with illness better. We're used to suffering, and our bodies are stronger. Cancer is getting awfully common, even among kids, so it seems.

    Sook, thanks for the updates. It's a bit like reading a ride report for a trans-continental ride!

  14. #64
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    Quote Originally Posted by Christine View Post
    ...
    Sook, thanks for the updates. It's a bit like reading a ride report for a trans-continental ride!
    Yes--a ride which any of us may have to take--

    Thanks for being open enough to share your experiences. Our good thoughts are with you.
    "There are two novels that can change a bookish fourteen-year old’s life: The Lord of the Rings and Atlas Shrugged. One is a childish fantasy that often engenders a lifelong obsession with its unbelievable heroes, leading to an emotionally stunted, socially crippled adulthood, unable to deal with the real world. The other, of course, involves orcs."
    John Rogers

  15. #65
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    a ride which any of us may have to take--

    That's one of the reasons I'm paying attention. Demystifies the process.

  16. #66
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    I know two guys in our age range that had throat cancer and they were treated for it a few years ago. Both did well and continue to live cancer free. The treatment wasn't easy, but the side effects diminished with time.

    Fight the good fight and kick it's azz!

  17. #67
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    Another stressful day at the doctor. My wife had her second scan today.
    The doctor said that the scan was clean, then the but.
    On the scan they detected an adenoma on her adrenal gland. The doctor felt that it was not serious but wants her to go to a specialist. I am getting to think that I will spend a good part of the rest of my life going back and forth to doctors.

  18. #68
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    I am getting to think that I will spend a good part of the rest of my life going back and forth to doctors.

    Took 2 weeks to get my mother her hip surgery, now she's heading to rehab. My father is due for surgery in August. The hospital uptown is beginning to feel like home away from home! It's also where two friends and my sister ended up for their procedures.

    Good luck with the "but"!! At least the doc doesn't seem worried.

  19. #69
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    Quote Originally Posted by Christine View Post
    I am getting to think that I will spend a good part of the rest of my life going back and forth to doctors.

    Took 2 weeks to get my mother her hip surgery, now she's heading to rehab. My father is due for surgery in August. The hospital uptown is beginning to feel like home away from home! It's also where two friends and my sister ended up for their procedures.

    Good luck with the "but"!! At least the doc doesn't seem worried.
    Two weeks ago I spent time at the cardiologist. My wife was experiencing chest pains. Heart disease runs in her family. One brother died from it, the other one had by pass surgery, her mother had a heart attack and died, her other brother had heart problems before dying of pancreatic cancer. The doctor sent her for a cat scan. The next day we got a call. Absolutely no heart problems. He said that when you get pain, forget about it.
    Four months ago I fell and sprained my ankle. I made several trips to the othropedist. All this running around with ankle tendinitis.

  20. #70
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    I hear ya. My father recently got a call from a cousin we haven't spoken to in decades, telling him that my sister and I should get checked for ascending aortic aneurysm. She and HER sister both have it, and since that's rare, it appears genetic.

    I've already got leaky valves (minor case.) Weird to be a relatively healthy person with a lonnngggg list of specialist phone #s in my phone.....but I guess it's good to have all this health care too.

  21. #71
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    Quote Originally Posted by sookpuppet View Post
    It's acidic. It was good until a week ago and then the canker sores didn't like it so much, I probably did too much of it though. But as a probiotic it worked great, I still do the occasional sweet yoghurt that still has the lactobacillious stuff in it. Good idea TOG! Lots of soups and roasted vegetable purees too. it's not too bad.
    Colgate sells a mouth rinse that helped with my mouth sores, it may help you.

    Canker Sore Relief | Peroxyl Gel | Colgate Peroxyl Mouthwash
    It's all fun and games until someone ends up in a cone.

    Don't make me go all honey badger on your ass

  22. #72
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    So I am down to my last ten treatments with radiation. All you that said it would suck were right. It has sucked this last week. I have had the occasional coughing fit that comes on for no reason and with the tender throat linings I usually end up with a blood pink tissue in my hands. I have kept the blood away from the kids sight but they sure get worried when their Dad gets winded and teary eyed from lack of breath. I tell them it's getting better but it doesn't feel like it. The pain has lessened as the doctors said it would, probably just getting used to it. Down to over 22 pounds lost. Sleepy as heck as I am still working 6 days a week, although I have cut back a bit.
    My brother saw me gagging on a pain killer ( a single ibuprofen) on the weekend and I think it scared the crap out of him. Nothing he could do but I think it drove home the point that there is more wrong with me than just a messed up voice. I now break the pills in half so they go down easier.
    On Monday I saw the photos from my last laryngoscopy. Normally the throat is pink, my tumor showed up a couple of months ago as a white speck or two. My throat is now all white due to the burning effects of the radiation. Think about a freshly butchered chicken breast, nice and bloody and a healthy pink. Now sear that chicken on a hot plate for a minute or two, not enough to get charred and you'll get the idea about what a radiated throat looks like on the inside. It wasn't looking healthy at all but the doctor seemed pleased.

    I am really sick of pureed food and ice cream. I was feeling good on the weekend and ate some ironically enough chicken. Man it tasted good, but I put some salt on it and the salt didn't agree with my throat. Choking fit again. Next chicken thigh I blended up with brown roasted onions and a cream of chicken soup. The flavor was great but so much of enjoying food is the textures.

    Perfume sets my throat off as well and with summer here, the young boys and girls I meet each day are masking any BO too well for my liking. Leave the spray deodorant at home please.

    Counting down the days, looking forward to an all clear and some crispy BBQ ribs with a hot chilli sauce.

    thanks all.

  23. #73
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    Congrats on getting the finish line in sight and seeing BBQ ribs on the other side!

  24. #74
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    Tell you what, I don't know who you are or where you live, but if it is within and hour's drive from me, I will DELIVER the ribs personally, pork or beef, your choice!
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

    "that was like trying to teach a goldfish how to play basketball over the phone."

  25. #75
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    SP, glad you're near the finish line, and your Dr is pleased.

    I'm not familiar with radiation's effects; but after my wife finished chemo, it seemed most people expected her to be back to normal almost immediately.

    Only you will know how your recovery is progressing, and it will take time. Be patient.

    If TOG is too far away, I'll cover the ribs offer for WNC!

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