Dealing with Cancer : My version - Page 4
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  1. #76
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    I hate to repeat this as you've probably heard it a million times, but stay positive and mentally strong. Tell yourself you WILL beat it. When I read stuff like this, and I get to pissing and moaning about something that is going on in my life, I almost slap the crap out of myself for being a pathetic complainer. It's people like you who are the heroes in life. Some years ago, I watched my only brother lose his fight (pancreatic cancer). I can feel what your brother is trying to come to grips with when watching you. But, alas, we can never know the true size of the fight in you. FWIW, yours seems Texas-sized & great ..and you're gonna beat it!

  2. #77
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    More on the "But"

    We saw the adrenal specialist today. This is what she said. If the tumor is not secreting hormones, it will be watched. If it is secreting hormones, it needs to be removed along with the adrenal gland. The doctor said that she can live a normal life with only one adrenal gland. My wife was terrified about it being malignant. The doctor said that my wife had a greater chance of being struck by lightening, than that tumor being cancer.

  3. #78
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    been a week since the last update, how ya doing?
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

  4. #79
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    Thanks for the offers of the ribs but I am gonna do them myself. Looking forward to them.

  5. #80
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    Quote Originally Posted by sookpuppet View Post
    Thanks for the offers of the ribs but I am gonna do them myself. Looking forward to them.
    Oh, so we are coming to your place for ribs ;)

    I would think the end of the treatments is getting real close; hope you are doing as well as possible and wishing you a speedy recovery and delicious ribs.

  6. #81
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    Yeah 4 treatments left. Looking forward to that. Really tired this last week and I picked up a cold somewhere. Fevers on and off this last week. Next week my recovery starts, I just hope it gets me back on my feet sooner rather than later.

  7. #82
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    Well the treatments of radiation finished four days ago. Oddly enough but not unexpected I am still feeling like sh!t. I understand that radiation is cumulative and the treatments I got last week are likely still affecting my throat but I am so over this. BUT when I looked at the people (mostly men) at the ENT specialist wearing bandanas to cover the holes in their throats and having to write down everything they wanted to communicate I should really be fukken grateful we got it this early. There are teenagers undergoing radiation and chemo at the same time. All I could manage was to smile at them and send them silent positive vibes. I hope they got them.

    My 12 year old son left to go back to boarding school after three weeks of not having much interaction with his old man. Talking is/ was really fatiguing and you can only fake feeling happy or good so long, that's the most tiring thing. Unfortunately I have to save my energy for the people that i meet each day that are paying our family's way (my clients). I don't have a lot of spare energy for the most important but not in a financial way, people in my life. I felt really sorry for myself that I didn't have a great time with my son, he had a good time with his mates but with his Dad, not so much.
    My wife was on my case about not hanging out with him but my point was hanging out with people on a downer is less fun than not hanging out with them. she disagreed and said just siting down together was more important. I thought him seeing me cough up and go into spasms resulting in pink tissues was not so good. Likely I could have tried harder if I had the energy.
    I promised him more time together in December when he comes home again and he said no worries. Trouble is as they grow more independent I may be missing the chance to cement our relationship. He had a birthday and we went looking at radio controlled cars, some really cool ones. We agreed on the model he wanted and I found one at a good price and arranged to get it sent to the hotel they were staying in before he flew back. I had to stay here and work. somewhere along the way I screwed up the order and got him a 2WD drive one instead of the 4WD one we both liked.
    He must have been disappointed, I was, but he said he was really happy and I shouldn't worry. Damn, kids edifying their parents, I love it but it must be his mother's influence, don't think it's mine. Gotta love that spirit of compassion, it will do him wonders in the future.

    So at present my throat is still sore, my voice is still funky robot sounding and I am waiting for another couple of weeks for things to settle down. Still can't eat hard food and the skin on my throat is starting to peel, it looks exactly like sunburn.
    It's like how microwaved food still cooks even after the oven stops, my throat is still cooking, least it feels like it. I will likely try and go for a long slow ride this Sunday but long at the moment is probably 20 miles. I need to get in a ride just to try and refresh my spirits after this week. The next time I will see a doctor is in about a month when they will scope my throat and hopefully it will be clear, then another month after that and then in increasing monthly gaps. I guess being screened so often is a good thing.
    I have decided against ribs and will try for some pies instead, I have never really been good at pastry and I want to get the process under my belt. (I'm thinking chicken,bacon and onion) Oh 28 pounds later my pants are all to loose, I keep checking to see if my fly is undone but it's just the looseness for losing gut fat. Hooray. cheers all. SP.

  8. #83
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    all I can do is smile brother....... way to go!
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

  9. #84
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    Thanks for the latest! We had our friend over last weekend for a BBQ (his idea- his birthday, he lives in an apartment.) I was told there'd be a few people coming over, then it was 8, then 10, then 15 (couples and kids.....)

    He seemed slightly more talkative and "himself" than usual. Said he was done with chemo but still had some radiation to go. I asked which was worse, he just shrugged. No details about treatment so I didn't push the issue. He said later that he'd be going back to work soon, that's nice to hear.

    His wife texted us the day after thanking us, saying he really needed to see people and he had fun. We're glad he felt up to it, though I do wonder how much effort it must've taken.

    I went to an ENT the other day due to the annoying cough and feeling like there's a lump in my throat. Told her I was a bit paranoid due to my grandmother having jaw cancer (though she was in her 80s.) Cardiologist next week for regular checkup, might as well get all this out of the way!

  10. #85
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    Congrats on getting the treatment done!! I hope everyday from here on out finds you feeling better and stronger. Sounds like your son understood what you are going through, to quote him, no worries, get better, then enjoy your time together.

  11. #86
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    Thanks for the messages guys. My long slow ride was a short slow ride in the end. Zero stamina and breathing through my mouth wasn't good on the throat, so I breathed through my nose and slowed down and limited my ride to about 8 miles. BUT it felt good to get out and about and I now can slowly build up from there. The throat has calmed down a bit although there is still a heap of saliva dribbling into my throat. Had my first brewed coffee in nine weeks on Sunday, meh! I can live without it, I think, suspect my taste buds are still out of whack. I am upping my fruit and vegetable intake and plumbing wise I am getting back to normal. It's amazing how little one poops when one isn't eating a heap. Don't care if I never eat another smoothie in my life but will still take one a day just so I don't have to think about swallowing. Been off painkillers since Friday and definitely glad about it as well.
    cheers all

  12. #87
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    Quote Originally Posted by Christine View Post

    I went to an ENT the other day due to the annoying cough and feeling like there's a lump in my throat. Told her I was a bit paranoid due to my grandmother having jaw cancer (though she was in her 80s.) Cardiologist next week for regular checkup, might as well get all this out of the way!
    Yeah, staying on top of things is definitely the way to go. Hope it all comes down to a cold or something.

  13. #88
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    Quote Originally Posted by sookpuppet View Post
    Thanks for the messages guys. My long slow ride was a short slow ride in the end. Zero stamina and breathing through my mouth wasn't good on the throat, so I breathed through my nose and slowed down and limited my ride to about 8 miles. BUT it felt good to get out and about and I now can slowly build up from there. The throat has calmed down a bit although there is still a heap of saliva dribbling into my throat. Had my first brewed coffee in nine weeks on Sunday, meh! I can live without it, I think, suspect my taste buds are still out of whack. I am upping my fruit and vegetable intake and plumbing wise I am getting back to normal. It's amazing how little one poops when one isn't eating a heap. Don't care if I never eat another smoothie in my life but will still take one a day just so I don't have to think about swallowing. Been off painkillers since Friday and definitely glad about it as well.
    cheers all
    Are you kidding me?!?!?! I hope you're not beating yourself up here, because that's straight domination right there. Really pulling for a quick recovery for you, it's well-deserved.

  14. #89
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    no coffee? ugh...........I don't know where to start, except to offer to drink it for you? I don't drink a lot, one cup in the morning, but don't talk to me until I get it.
    How are you going to warm your hands in the morning?
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

  15. #90
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    Quote Originally Posted by Touch0Gray View Post
    no coffee? ugh...........I don't know where to start, except to offer to drink it for you? I don't drink a lot, one cup in the morning, but don't talk to me until I get it.
    How are you going to warm your hands in the morning?
    I have 2 or 3 cups. Or so.

    The cup at home, which doesn't get empty, so it counts as 1.

    The cup at work, which is the same cup I use all day.

    Sometimes I go to lunch. That would be the third.

    I will add a cup to the day, and have it for ya. That way you get 2. Mine and T0G's.

  16. #91
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    John hung out with his friend after work the other day, says he's now on a restricted diet. I'm surprised this wasn't the case from Day 1 of treatment! Maybe the BBQ was a "cheat day" or something? Dunno.

    It's so restricted, I can't figure out what he CAN eat. No vitamin C, sugar, refined foods...... he must be allowed some fats at least. Damn. Thought maybe I could get him a few of those vegan lentil/pesto wraps which happen to taste great, but I'll have to find out more.

  17. #92
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    Here is a pic from about a week before the radiation treatments finished.
    The purple lines triathlete marker are what they used to get everything lined up and you can see the very clear line between zapped areas and not. I don't have any whiskers growing in the red areas now. Things have calmed down again. I can pretty much eat or drink anything and have no trouble swallowing now. My stamina is still way down but my Garmin tells me that my average speed on my training ride, about 20 mlies, is increasing by about a MPH each week. My heart rate is still way high and even now my resting heart rate is about 15 BPM higher than before the treatments. But it is getting better.

    I have a check up on Monday which is when they will scope my throat and look for anything nasty. I am pooping myself about a bad result and that black dog can jump on my shoulders at those times if I let him. It's hard not having a drink to take your mind of stuff. They say talking is good for that but that's the irony there. Cycling helps a heap, I realize how much I love my riding.

    Hopefully all is good on Monday and I don't need to worry so much. At the moment every little tickle in my throat has me thinking "C".

    Peace all.
    SP.
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  18. #93
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    Quote Originally Posted by sookpuppet View Post
    Here is a pic from about a week before the radiation treatments finished.
    The purple lines triathlete marker are what they used to get everything lined up and you can see the very clear line between zapped areas and not. I don't have any whiskers growing in the red areas now. Things have calmed down again. I can pretty much eat or drink anything and have no trouble swallowing now. My stamina is still way down but my Garmin tells me that my average speed on my training ride, about 20 mlies, is increasing by about a MPH each week. My heart rate is still way high and even now my resting heart rate is about 15 BPM higher than before the treatments. But it is getting better.

    I have a check up on Monday which is when they will scope my throat and look for anything nasty. I am pooping myself about a bad result and that black dog can jump on my shoulders at those times if I let him. It's hard not having a drink to take your mind of stuff. They say talking is good for that but that's the irony there. Cycling helps a heap, I realize how much I love my riding.

    Hopefully all is good on Monday and I don't need to worry so much. At the moment every little tickle in my throat has me thinking "C".

    Peace all.
    SP.
    assuming next monday not today....not knowing where you are
    For some reason it never occurred to me until I saw this picture, how badly the radiation BURNS you, but I guess that's really how it works (over simplification)

    btw. THRILLED to hear you are back on your bike!
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

  19. #94
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    All the best for a "clear and good to go" result.

  20. #95
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    Glad to hear it! Our friend started work again yesterday and is still doing immunotherapy- think he's done with the chemo and radiation.

    He was on a very strict diet, but is coming over for a BBQ this weekend. I asked if there were any special requests, and he shrugged like nothing's changed. He's bringing the ribs from his favorite butcher as usual. Guess the diet is during treatment only? Or maybe he just goes off it now and then. Still no booze AFAIK.

  21. #96
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    Great to hear you are back on the bike and getting better with each ride. No doubt the bike is one of the best stress relievers there is. Easier said than done but do your best to put off the worrying until the day of your appointment.

  22. #97
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    Energy and stamina will return, give it time. My doc had me take B12 to help, it seemed to work, don't know if it was a placebo effect.

    I understand the fear leading up to your doc visit, I still get a little twitchy before mine, and it's been 1+ years since I finished chemo. It does get better, I promise.
    It's all fun and games until someone ends up in a cone.

    Don't make me go all honey badger on your ass

  23. #98
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    Quote Originally Posted by sookpuppet View Post

    Hopefully all is good on Monday and I don't need to worry so much. At the moment every little tickle in my throat has me thinking "C".

    Peace all.
    SP.
    Glad to hear you're thru the treatments. Everything will be better with time. Unfortunately the paranoia will not go away but gets less intense over time. Hang in there

  24. #99
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    Check up on Monday this week. Get through the weekend and then fingers crossed. I actually feel pretty positive. Bike riding really helps. Started jogging again this week as with my new "open" throat I have ate a lot of junk.

  25. #100
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    Quote Originally Posted by sookpuppet View Post
    Check up on Monday this week. Get through the weekend and then fingers crossed. I actually feel pretty positive. Bike riding really helps. Started jogging again this week as with my new "open" throat I have ate a lot of junk.
    careful.... some of that stuff they pass off as food is bad for ya...just sayin'
    Of course I'm sure...that doesn't mean I'm right.....

    "There's no sense being stupid unless you show it."

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