• 08-21-2015
    sookpuppet
    So, I went for my check up or follow up consult with the ENT specialist and he put the scope up my nose to take some some pictures. There is no visible signs of any cancer in my throat and that is what we did the radiation for. Pass. A big relief!
    There is still some swelling from the radiation, not that I can feel it. So for now he told me to return to life as normal, but it won't be a complete return.
    My vocal chords have been through a wringer and my voice is rather raspy. I can't shout or sing, (actually I never could sing but my ability to sing off pitch at higher notes has go from woeful to impossible) No more torturing my family with my sing a longs to Taylor Swift or Kate Bush. I also get a lot more spit coming into my mouth and air conditioned air really dries out my throat. Roll on September and October.
    My demeanour has become a lot more chilled and I am excited about intensifying the relationships with those that are most important in my live. Family! I hope I don't become that helicopter dude. At the back of my mind is the fact that I am likely to get cancer again some time in my future but in a way I know the tiger is there and I'll deal with it at that time.The best I can do for now is never go back to smoking and take better care of my body. The relationship thing will also help with my moods which can from time to time get pretty black (I think depression is a trigger for diseases of all kinds). I guess communication is the key to keeping the black dog off your back. That and riding or being active. I know booze and smokes don't do it.
    I will go back next month for another look and then in November get another CT scan to see if anything shows up. I think it won't.
    Anywhos, thanks all for your messages of support and you likely won't believe it but the support of strangers is a powerful thing. If I haven't responded to any PMs, I'm sorry, I did however truly appreciate all of them. peace .
    SP (not my real name)
  • 08-21-2015
    Touch0Gray
    I don't believe you, I think sookpuppet is your real name!

    I am really glad to hear that your checkup went well. Hopefully you will improve steadily.
  • 08-22-2015
    paredown
    Quote:

    Originally Posted by sookpuppet View Post
    ...
    Anywhos, thanks all for your messages of support and you likely won't believe it but the support of strangers is a powerful thing. If I haven't responded to any PMs, I'm sorry, I did however truly appreciate all of them. peace .
    SP (not my real name)

    Thanks for being brave enough to post about your experience with the big C. The learning goes both ways...

    Great that you have turned the corner. Now for the long term project of living a healthier, more balanced life!
  • 08-22-2015
    Christine
    What a tremendous relief!!! Now you can let it enhance your appreciation of everything. SO glad to hear this! :14:
  • 08-22-2015
    daniell
    You were in my thoughts, and I am happy for you.

    Sometime ago, I wrote about the "there is always a but" that the doctor said after telling my wife and I that her scan came back clean. They did an MRI of the growth on her adrenal gland, and did some hight tech blood work. The growth is not secreting hormones, and and is not growing. She does not need surgery. It just has to be watched.
    Her main problem now is that she is scared. So far all of the scans and biopsies have been negative.
  • 08-22-2015
    Christine
    Her main problem now is that she is scared. So far all of the scans and biopsies have been negative.

    Another big sigh of relief! Maybe she can save the fear for follow-up visits only? Easier said than done of course.
  • 09-14-2015
    sookpuppet
    I had a follow up visit, now monthly for a while. Things were looking good and the staff were pleased with my progress. I had a sore throat, likely a cold as fall kicks in, and all I could think about was "oh sh!t it back" which is weird as there was no pain with it before I got diagnosed. So back to normal but I never forget what it was like and am still paranoid about my throat. No way I will ever be able to rock the mike at karaoke nights or a cappella BBQ performances and my demeanor is a lot calmer these days. Now my frustrations are just regular life stuff. Here's wishing you all good health and I'll likely check in again after next month which I think includes another CT scan of the area and bloodwork. BTW I still get tight in the throat after hard exercise but that is often the case they said.
  • 09-14-2015
    il sogno
    I am truly glad you've made it through this. Good health to you!
  • 09-14-2015
    Touch0Gray
    some of us mere mortals never could sing, welcome to my world...LOL
  • 09-14-2015
    snapdragen
    I think the paranoia is normal. Heck, I'm about two years out, and I still get twitchy before an oncologist appointment. It has gotten better though, with each day, week and month.
  • 09-15-2015
    Christine
    So glad everything's going fine! Too bad about the throat, but in the scheme of things it'll do!

    Husband's friend is going back for surgery tomorrow- something was detected on the latest CAT scan, and rather than just go in for a biopsy, they're going to go right in and remove if needed. Could be swelling, could be more tumor.

    John has a doctor's app't the same day, in the same area, so he might be able to swing by for a while. I hope he does.
  • 09-15-2015
    MoonHowl
    Glad to hear the follow-ups are showing the all clear! No way to get completely over the anxiety of a follow-up but over time it gets easier to put off the anxiety until the day of or a few days before a follow-up. Of course anytime something doesn't feel quite right will bring on some anxiety as well. Congrats on making some changes for the better and no worries mate:)
  • 12-01-2015
    sookpuppet
    Been a while since I posted. I had a CT scan in the middle of November, they scanned my head and down to the bottom of my lungs. The scan is to show up anything that can't be seen by the scope. I had to wait over two weeks to get the results and the longer I had to wait the more sh!t food I ate and the grumpier I got. I went in on Monday to hear the results but I was not a pleasant person to be around on Sunday night. I had a slight ear infection last week and it wasn't helping my demeanor. So in I went and I got an all clear. It's amazing how scared and stressed the mind can make oneself. For no reason at all but I am now officially Cancer free. I know it's there just waiting and biding it's time but the race is on now, it may come back but I'm going to be doing a lot of stuff before it does. So I still go back for monthly checks with the scope up the nose and the doc does visual check for odd stuff. However he told me to get on with life as usual and gave me a big smile so I am smiling as I type this now. I was going to treat myself to something for Xmas if I got through clear but seriously nothing will make me happier than spending the holidays with my family free from worry. I might allow myself a strong drink, a wine but that will be all. Getting drunk even a little doesn't do it for me anymore. To anyone that just has the occasional smoke or chew, I would strongly advise you not to and to anyone else, if you feel crook for more than a week or two, go see a doctor. Likely if I had gone in as soon as I damaged my voice chords I could have saved a lot of anguish and nearly 6 pages on this thread on RBR. Finally thanks for all the messages of support and encouragement and some really great advice in private message. This collection of moreons is a pretty special place. Best wishes to all you and yours and see you you all in 2016 where I hope I can get my weight down near where it was when I couldn't swallow food. Peace. Oh and one last thing, if any of you are ever in the same situation don't hesitate to PM me.
  • 12-01-2015
    paredown
    Good to read about the 'all clear'

    Stay positive, eat well, ride your bike and be happy!
  • 12-01-2015
    Touch0Gray
    Thrilled to hear the good news. I understand that it will take a long time to trust you own body again, hopefully, it will be sooner rather than later!
  • 12-01-2015
    Jon D
    Congrats on the all clear.. enjoy
  • 12-01-2015
    daniell
    I was thinking about you. So happy to hear the good news.
    A couple of weeks ago my wife had her routine blood tests to see whether there were markers present. After an hour wait for the doctor, he came in with a big smile. That smile told it all. He said that my wife could buy green bananas.
  • 12-01-2015
    VaughnA
    Somehow I missed this thread since I'm rarely here much anymore but at least I'm happy to be here to say congratulations.
  • 12-01-2015
    Upnorth
    Amen, great news! Go and enjoy yourself.
  • 12-01-2015
    bigrider
    Awesome news!!!
  • 12-02-2015
    JS1
    Congratulations and hope for continued clear scans! Have a great holiday...
  • 12-03-2015
    Christine
    Nice to know, thanks for the updates and the insight! :14:
  • 12-03-2015
    kiwisimon
    Great news, good luck on the weight loss. Remember you are the one responsible for what goes in your mouth.
  • 12-28-2015
    sookpuppet
    I hate this time of year. Always have, but the doc told me yesterday that my next checkup will be in six months!!! That was good news. Now it's time to go and shovel snow and then put away the Xmas decorations. Happy New Year folks. 2015 I am over it.
  • 12-28-2015
    Touch0Gray
    Quote:

    Originally Posted by sookpuppet View Post
    I hate this time of year. Always have, but the doc told me yesterday that my next checkup will be in six months!!! That was good news. Now it's time to go and shovel snow and then put away the Xmas decorations. Happy New Year folks. 2016 I am over it.

    good news brother, merry fricking Christmas and thank gawd for a NEW year. It will take a while to relax i am sure, but you will get there!